Wednesday, December 1, 2010

The PEG is out!!

Well, today I went to my G.  P., John Good as a part of the process of getting a second opinion about having the operation to remove the PEG tube.  We have been emailing him about how the specialist [hereafter will be referred to as THE IDIOT] was not able to pull the tube out .  Doctor Good, like Doctor Kerbavaz, has been our family doctor for over thirty years.  In the  back of our minds we wished Good would try to pull the tube out.  But we didn't think that was in the cards because after all the idiot specialist failed.  But when we told Good that the idiot was so uncomfortable around me that he would not talk to me the first time, that he asked if Linda and mikee really had to be in the room, that the people whose tubes he took out were normally comatose, etc, Good asked if I wanted him to try to pull it out because he shared our concerns about the operation.  Of course I said YES!  So after two strong pulls with the right intention, THE TUBE WAS OUT!  NO OPERATION NEEDED!  Dr. Good, like Kerbavaz, is my hero!  And I am typing this three hours later!


Stephen Emanuel wrote:
that's the kind of second opinion we like...have fun at the performance!  Steve and Marjorie

Frank Moore wrote:
you can say that again, Steve!

Sandy Mock wrote:
Interesting, isn't it, that the "specialist" couldn't (or wouldn't) do it, but Dr. Good did...HOORAY FOR DR. GOOD!!!!

Frank Moore wrote:

Dr. Richard Kerbavaz wrote:
Perfect solution!!

Frank Moore wrote:

Claudette Bibb wrote:
How brilliant!! Sounds so easy after all the anxiety caused by THE IDIOT. Wonderful news for you all.

Frank Moore wrote:
exactly, Claudette!

Betsy wrote:
Frank that is wonderful!!! I work with lots of kids with pegs, but unfortunately they typically have to have it because they cannot swallow nor chew to be safe. SO, good for you, glad everything worked out, I applaud you for speaking up and asking questions. Sounds like you had a great visit with our buddy Steve. I keep track of him through you! I miss him, we sure had some good times.
Have a wonderful holiday season with all your family,

Frank Moore wrote:
hey, Betsy!  I learned a long long time ago they often don't know what the fuck they are talking about and they can put a fatal curse on you if you
fall for it!  I never have!

Yep, our tribe is still intact after forty years or more!  Great visit with Steve and his mate!

Paul Escriva wrote:
Hot damn!

Eda Malenky wrote:
what a story!  what a GREAT story!  Good for you  (haha)!  i'm really so glad.  wish i could have a doctor Good in NY. 

it's gotten cold here, but lovely.  we still picked a few raspberries in our backyard.  after alan and our upstairs neighbor/tenant buried her cat there today (poor kitty had feline leukemia and deteriorated suddenly and quickly while she was away 4 wks taking care of her mom in Minneapolis, where btw, it got to 11 degrees.)

so, time for me to get ready for bed so i can get warm from Alan's fur.

again, so glad.  lots of love, eda

Frank Moore wrote:
and ain't that what living is all about?  Creating great stories to re- tell!

Michael Diehl wrote:
Hi Frank and Linda.
Well it is hard to keep a good man like you down for long. I have been struggling with some of my own physical and mental disabilities but part of what gets me through the dark tis the season to be jolly is hearing you on Crack of Dawn singing Christmas songs. Here's to your long life. You are an inspiration of how to beat the odds by being even odder!
Ho ho ho,
Michael Diehl

Frank Moore wrote:
well, Michael, this places a great sacred responsibility over my head!  But I will do my duty tonight!  Keep in mind I just had my trach out, so my voice is untested!  The odds are more odd!

Wednesday, November 24, 2010

peg tube update

Ah, well, today at the doctor's office, my PEG [feeding] tube [which I had to let them put in to get out of the hospital] didn't /wouldn't come out even after a couple of hard yanks...  Which turns out to happen in five percent of cases [this was the first time I heard that fact].  So I need to go to the hospital for an operation to remove it.  So there is at least one more hoop to jump through in this journey!  It also turns out most people keep their tubes in for forever!  So removing them ain't an everyday affair!  Again that is the first time I heard that!

Annie Sprinkle wrote:
Happy thanksgiving!

Frank Moore wrote:
exactly, Annie!  Well put!  We decided to slow the process way down, cancel the operation, get other options and opinions.  Another risk of that "procedure" is tearing the Esophagus !  If that happens, you would need a PEG feeding tube, etc!  I don't know yet
the odds of that happening...  But...

Paul Escriva wrote:
Oh shit Frankie....
sorry to hear this.
Conversely, I'm glad you are well enough not to need a PEG.
Odd that this is the first time you're hearing the scoop!

Tuesday, November 2, 2010

My trach was taken out today!

My trach was taken out today!

Jeff Snyder wrote:
That's wonderful news! Congrats Frank.
~ Jeff Snyder

Frank Moore wrote:
ah, thanks, Jeff!

This is the kind of email that got me out of the hospital!

-------- Original Message --------
Re: From Frank
Date: Sat, 3 Jul 2010 14:38:21 -0700 (PDT)
From: jeremy watts
To: Linda Mac

Frank, you are the weirdest motherfucker I have ever met.  Please know that you are in our thoughts... naked.  ; )

-------- Original Message --------
thanks, Jeremy!

In Freedom,
Frank Moore
facebook: Love Underground Visionary Revolution
facebook group: The Universal Underground Video Bank

Thursday, September 2, 2010

my ENT

Kerbavaz replied: "Great to hear restaurants are back on the agenda!!"

A big day!

We went to the doctor's today.  She ok'd the  start of the process of the removing of  the trach.

But the big news....  On our walk back to the car, we stopped in at Mokka (the great Cafe where the guys got their coffee during my hospital stay... We kept saying just wait until I am eating again!)  I suggested we could drop in there!  I ate a bowl of raspberry sorbet! Yum!  I  had no problem. First time eating in a restaurant since the hospitalization. It's a big day around here!